Last week I had the privilege of attending the Consumers United for Evidence-based Healthcare Advocacy Summit, followed by the of the and Collaborations. Each of these organizations is focused on promoting evidence-based healthcare, through consumer advocacy organizations (CUE), systematic reviews and meta-analyses on healthcare (Cochrane) and social, education, and justice work (Campbell).
Over the course of the conference, I attended a lot of great sessions, met plenty of interesting people, and learned about many resources of interest. Here are a few from that last category:
- : freely available systematic reviews on crime and justice, education, and other social welfare topics
- : systematic reviews on a variety of medical/healthcare topics, including many beyond the pregnancy and childbirth topics for which they are well known. Requires a subscription unless you are ; and some abstracts/plain language summaries are freely available.
- “,” a new book from health journalist Ray Moynihan. I haven’t read it yet, so I don’t know how/whether it balances the tendency of pharmaceutical companies to classify almost every woman as wanting sex too much or not enough against the needs of women with serious pain or other issues, but I’m adding it to my to-read list.
- Searchable databases of clinical trials: (U.S. focus); (international); (searches across multiple databases).
- : from the Lloyd Society, searchable database of health-related research in criminal justice settings, with geographical mapping
- from the National Library of Medicine: provides temporary free access to full text materials for disaster response, currently for Pakistan floods and cholera outbreak in Haiti
- : expert critiques of health journalism
- database from ProPublica: searchable database of payments made by pharmaceutical companies to doctors for promoting their drugs
- , and the Army of Women Health of Women Study: gave a plenary talk on mobilizing consumers to engage with research, including the HoW study, an online cohort study looking at the health of women over time
- : a bit of a techy thing, this website describes some ongoing research/projects to embed mobile technology in personal health care. Ida Sim of the project gave one of the plenary speeches.
- : This organization is currently responding to cholera in Haiti; Joia Mukherjee of PiH gave one of the plenary addresses, on their approach to providing care after the earthquake in that country, especially with an HIV focus.
Beyond these resources, I met or saw speak lots of interesting folks working in various forms of healthcare and consumer advocacy, from groups such as the , , , , , , the , and read. If you were there, say hi to us in the comments!
Tweets from the meeting, full of links, quotes, and other commentary, are archived at What the Hashtag using the tag #ccckeystone; . Mine are listed under @rachel_w.
I would like to express my thanks to the personnel of the U.S. Cochrane Center who arranged a scholarship and provided support for the meeting. It was a great, useful experience.